Grace for Rett » Grace's Life with Rett Syndrome

Therapy Schmerapy

It’s funny when I try to put myself in a stranger’s shoes and imagine what they must be thinking when I throw around the word ‘therapy’ so much. It seems that when people want to make plans with me, there’s always some sort of ‘therapy’ which dictates my schedule. But I don’t specify, I just say ‘therapy’. People must think I’m taking my kid to a shrink once a week!

It’s been so long since I’ve blogged here. Other Rett blogs have a constant stream of posts and even though I blog for a living, I just don’t know what to say here. I mean…what do people want to know that Grace poops 2 times on the days she takes her Movicol in the morning? I don’t really know what to write about.

Grace has been having all out two-year-old tantrums which is pretty entertaining. As soon as we start walking up the stairs for bed, the water-works start and she is the strongest willed little diva. She can scream for an hour before we give in and get her up. We used to let the boys cry it out at night, but it’s hard with a little girl with special needs. I don’t have the heart to do that to her.

Catherine Bersell - July 14, 2011 - 12:26 am

Strongest willed? Not by a long shot Sweety. By the time you were two I was reading every strong willed child advice book I could get my hands on. LOL At least she comes by it honestly. Hmmm, what does that mean anyway? Is there a dishonest way? Let me put it this way, she reminds me of you, and that’s a beautiful thing. Muah-Mom

Elaine - July 15, 2011 - 2:03 am

There are two things here I think are great 🙂 First that Grace is strong willed and maybe a little tenacious ?? As a gorgeous little girl with special needs, that is a great attribute to have on her side, it will help her to make the absolute most out of her life and help her achieve to her best… Second I’m glad you don’t let her cry it out, she is special and she needs her special parents to treat her special 🙂 Much love and hugs …

ps I just love hearing about Grace, I don’t mind if you tell me how many times she poops LOL

Kirsten - July 19, 2011 - 1:54 am

If you feel like writing, do. As a stranger, I can tell you what I think: wow. I love the way you love her. I love the way you get on with it as much as you can, just doing as best you can. I hug and kiss my little girl a hundred times a day but I give her a special hug after I read your blog.

Lunar - July 20, 2011 - 7:42 am

I love reading this blog, I love the honesty of it. Tears, tantrums, even poop, it’s all life, and therapy of a kind for many who read it I suspect! You may not know it but you are an inspiring woman, big hugs to you:)

Melise - September 12, 2011 - 7:43 am

Caylin & Grace have obviously got together at some point and decided to gang up against us! It could have been me writing about Caylin in this post lol. She does the exact same as Grace as soon as we start walking up the stairs with her lol xx

F a c e b o o k