Grace for Rett » Grace's Life with Rett Syndrome

Teaching Girls with Rett to Read and Write – Rett University

Note: there’s video in this post. If you can’t see it, click here.

The biggest thing that separates humans from other beings is our ability to read, write and communicate. If we don’t give girls with Rett the tools to do this, we’re willfully taking away their humanity.

I learned that from Susan Norwell, one of the most groundbreaking educators I’ve ever had the pleasure to meet. 20 something years ago, Susan had a girl with autism in her private practice. She taught her to read, write and communicate like she would any child with that level of disability. Then, the girl was re-diagnosed with Rett syndrome and Susan has an awakening. She told me, “I thought to myself ‘this is the same brain as before. She’s just locked in.'” That started Susan on a journey of discovery whereby she has formulated a tried and true method for reaching into the world of these locked in girls and helping them to realise their potential – to read, write and effectively communicate.

In partnership with Girl Power 2 Cure, Susan is launching Rett University designed for educators and therapists of Rett Syndrome students. Experienced professionals share their cutting-edge knowledge on how to support their students with Rett Syndrome and push them to their highest levels of academic, physical and personal achievement.

PLEASE watch this promo below and vow with me that

no girl will be left behind

Rett University is an e-learning platform specifically designed for educators and therapists of Rett Syndrome
students. Experienced professionals share their cutting-edge knowledge on how to support their students with Rett Syndrome and push them to their highest levels of academic, physical and personal achievement.

• help your student/child learn to read and write
• develop real communication skills
• learn strategies for sensory regulation
• learn where to start when initially diagnosed to build communication and appropriate expectations
• develop effective appropriate IEP goals

Rett University is brought to you by Girl Power 2 Cure in partnership with Susan Norwell, a world-renowned Rett Syndrome education and communication specialist; and, a leading e-learning company.

Danielle Mcallister - January 30, 2014 - 12:37 am

Amazing..thank you for your continued effort in “teaching” the world about our girls!

Ann MacGregor Roberts - January 30, 2014 - 12:47 am

This is great news!

Terry Boyd - January 30, 2014 - 12:58 am

I am so happy to see this revival. We always believed our daughter was an intelligent child. We felt very alone at times because not many parents with a daughter with RTT in Ontario advocated for full inclusion with a IEP that had true educational goals. This forum will allow young parents to support each other. Our daughter Kayleigh is now 26 and did received a full diploma until grade eight. Kayleigh got a certificate in grade twelve. She was taught in her neighborhood school in Ontario. Kayleigh was educated beside her peers who are now her Facebook friends.. She did tests, science projects, made presentations, participated in literature circles, etc. This was done with the use of step by step switches, the speakeasy, a MightyMo, boardmaker symbols, intelikeys, itelitalk and the overlay program. I am so excited to see what the girls will be able to do with the use of their tobii eye gaze machines and an IPads. The sky is the limit.

Chuckles Kathy Anderson TheFirst - January 30, 2014 - 11:32 am

I feel the same way about children with Angelman Syndrome. ID shouldn’t be presumed

Scott Novitsky - January 31, 2014 - 12:22 am

So excited to see that this is available for our girls. How do we go about purchasing this program for our kids classroom?

Barbara Cunningham - January 31, 2014 - 5:23 am

I knew a girl with Rett Syndrome and she learned to type, and walk, and use the bathroom.

Scott L. Vannatter - February 8, 2014 - 5:11 pm

This is great! I am so thankful for those who don’t give up, but keep trying to find ways for people with disabilities to do the things we love to do. Reading/Writing is so very important. Keep us informed.

Queenie May - September 8, 2014 - 5:11 am

This is truly a surprise and a blessing! I am from the Philippines and my daughter with Retts is 10 years old. How can we avail of this?

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