Grace for Rett » Grace's Life with Rett Syndrome

Picture the Hope Promo Video

Note: There’s video in this post. If you’re reading in your email inbox, click here to view.

Because Grace has Rett Syndrome, we’ve been catapulted into a whole new world in the last couple years. Aside from running Gracie May Photography, photographing families and weddings, I’m on the board of Cure Rett and I help to run a campaign to photograph girls and women with Rett. It’s called the Picture the Hope Awareness Tour and photo shoots are only part of what the tour is about. This video is a little behind the scenes look at what happens during these photo days. It’s really changing my life and everything I thought I was going to accomplish when I started this photography business.

Angela Zimmerman - March 22, 2013 - 1:18 am

My daughter has Rett and is 4 also! We would love to be part of your photo shoot! I am a single mom and would love to capture the bond we share!

Scott L Vannatter - March 22, 2013 - 7:14 pm

I shared it on Facebook.
Wish I had many millions of dollars!
Just know I support what you are doing.
Great Video!

Tracey - April 15, 2013 - 11:21 am

LOVE LOVE LOVE! Would be awesome to see this in Australia, maybe after I pop out this bub I can get something going?

F a c e b o o k