Grace for Rett » Grace's Life with Rett Syndrome

People with Rett Syndrome Understand

If you do just one important thing today, watch this video. The idea that just because you can’t speak, you don’t understand is such a travesty in the world of girls and women with Rett Syndrome. They are underestimated. Some are treated like babies for the whole of their lives. This is a very old fashioned idea. These girls are simply locked-in. Please watch this video.

Scott L Vannatter - February 15, 2013 - 1:48 pm

I had to do things differently after the stroke; I could still talk and all, but there were many things I just couldn’t / can’t do the same way. Why should they be different? They just need a different way to communicate.

Bea - February 19, 2013 - 2:13 pm

I’ve sent the link to *everybody* who works with our daughter and have had tremendous positive feedback – we’ve always known that she can understand so much more than we realise, but it’s good to be reminded every now and then.

Thank you for posting this video !

Patricia Cady - February 24, 2013 - 4:43 am

I know fully well that my granddaughter does understand. She also has Rett Syndrome. I loved the video and I plan on posting it and sharing the video. Thank you for making the video.

Linda Bell - August 22, 2014 - 11:00 pm

There are no words. (crying)

Lisa Williams - November 3, 2014 - 9:34 pm

My little girl is 6 yrs old with retts she has just started to hold her breath at night she does it a few times before she sleeps for the night this is nwe for her and me

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