Grace for Rett » Grace's Life with Rett Syndrome

Grace’s tummy results are in {PH Study, Contrast X-ray, Feeding Tube, Fundoplication, etc}

With the PH probe in her nose

Grace and I spent yesterday and today at Southampton General Hospital having a couple of tests done to prepare for her g-tube surgery next month. So for 5 days leading up to her appointment, she was off all of her meds. We expected a hellish few days and….nothing. No crying, no pain…nothing. She had a PH test where the threaded a little probe wire down her throat to record her acid levels because we had reasons to believe that she’s had severe reflux for two years, now {vomiting, coughing, crying, gurgling, etc}. And then they did contrast x-rays to watch some dye go through her stomach to see if there were any physiological reasons for the reflux.

All of this was to decide if she would have a fundoplication at the same time as her feeding tube.

And the results are…{drum roll please}…she doesn’t have reflux! Not at all.

So her feeding tube surgery {a peg} will be very straightforward and nothing too exciting. We’ll still be in the hospital for 3 days, though, but at least it’s the nicest hospital we’ve experienced so far.

thank GOD for iPads

getting her x-ray

Chari Curtis - January 25, 2012 - 5:14 pm

Fantastic news! She is so, so adorable!!!! God is good!!!!

Emma & Holly Boyes - January 25, 2012 - 5:29 pm

Gosh bless you and poor little Grace. What was it if it wasn’t reflux?!?
I agree with thank god for iPads. Holly is obsessed with Mr Bloom and he goes everywhere with us!
I hope it all goes well with her feeding tube.
Emma & Holly

Lea - January 26, 2012 - 5:15 pm

Wonderful news! God is so good! I know it’s not easy to see our little ones hooked up to machines – enough to break a parent’s heart. What a relief to know that His strength is made perfect in our weakness!

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