Grace for Rett » Grace's Life with Rett Syndrome

Feeding Grace

Grace is still only eating baby food and it has to be almost completely pureed. She chokes on anything chunky. So day after day, I try to keep things interesting and not spend my entire existence making separate food for Grace so here are some things I’ve learned:

  • Whenever I make us a dinner that can be blended for Grace, I make extra.
  • Beans & rice do NOT make good baby food. I spent an hour blending it and putting it in those little baby food freezer trays and then she was choking on the bean skins which didn’t blend well.
  • Grace loves peanut butter and jelly sandwiches. I just soak it in apple juice and feed it to her with a spoon.
  • Shepherds pie blends beautifully
  • So does fish pie
  • Grace refuses to drink anything other than milk so water and juice I have to pump into her mouth with one of those plastic syringes that come with medicine.
  • She eats oatmeal every single morning. I make a batch a week and put it in these baby food freezer trays. I add different things: cinnamon, sugar, brown sugar, maple syrup, raisins, banana puree, sometimes Cadbury’s hot chocolate powder to make chocolate oatmeal 🙂
Delaina - January 6, 2010 - 9:53 pm

I’m curious to know how you make the oatmeal, do you use regular oats or baby oatmeal?

Judy Johnson - January 7, 2010 - 12:30 am

I never fed Kimberly (my daughter) baby food – everything that we ate – she ate – I just used the blender. Of course that was 35 years ago – it was a little work – but well worth it. Bruce and I pray for Grace and her recovery. You and Stephen are in our thoughts and prayers.

Blessings!

Bruce & Judy – Groveland, FL

elizabethhalford - January 7, 2010 - 11:19 am

@delaina: Hi! I make it with slow-cook oatmeal (the grown up kind) with whole milk and sometimes a bit of cream. Trying to keep her weight up so I use whole milk and cream when I can.

Eylem Selby - January 11, 2010 - 3:43 pm

I find cream cheese, natural yogurt and humous the best extras to add onto home cooked/blended food. It makes it creamier and therefore easier to swallow. This way you also increase the calcium intake. My daughter Erin regulalry takes calcium folinat tablets (crushed and mixed with food) but her calcium levels are still low.

elizabethhalford - January 12, 2010 - 5:27 pm

Ah yes the power of cream cheese. We use loads of that 🙂

iris - May 1, 2010 - 7:18 pm

with my daughter kessi 2ys,recently she been tube feed after going in a coma state.the good news , she has started eating softt lump food,what i eat is want she eat.all want i do just chop it and if she doesnt want it she spit it out and never chorks. amazingly she has started HOLDING A spoon WITH A LEFT HAND WHICH IS MORE ACTIVE
please moms over never giveup ,THERE IS ALWAYS LIGHT UNDER THE TUNNEL.

elizabethhalford - May 14, 2010 - 2:26 am

@Iris: Oh goodness thank you SO MUCH for sharing this with us!

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