Grace for Rett » Grace's Life with Rett Syndrome

Eye Pointing and Rett Syndrome

When Grace was first diagnosed, this term “eye pointing” kept coming up and it didn’t make much sense to me. When Grace was still a baby and young “toddler” (who never toddled) she was addicted to her bottle and one of the ways we displayed her ability to understand us and interact with the world around her was to take her bottle and put it anywhere in the room, wait for a good 15-20 mins and then say “Grace, where’s your bottle?” and within a nanosecond, she would look directly at it. This is eye pointing.

Rett may have rendered Grace into a practically quadriplegic state of having zero control of her body, but one thing she can always control with precision is her eyes.

Check out the video above and you’ll see how she can use her eyes to communicate what she wants.

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