Grace for Rett » Grace's Life with Rett Syndrome

Ditching formula & going back to real food

Note: this post has video in it. If you’re viewing in your inbox, click here.

Grace got her feeding tube 5 years ago yesterday. It was the best decision ever. Not only can we get medications into her without fighting, we can keep her hydrated and fed when she isn’t feeling well. And of course, she hasn’t had aspiration pneumonia since we did it.

With the tube comes a monthly supply of liquid formula delivered to our door (thank you NHS!) and for the last 5 years we’ve been using nothing but that. I mean….it’s so eeeeeeasy. So why not? But recently I started feeling like I was just being lazy. I work so hard feeding the rest of my family but Grace just gets the easy stuff. So anyway, my first attempt can be seen below. It’s a journey we’re on. Weekdays are hardest while she’s at school. I don’t know if we’ll ever be 100% off the formula, but if we can cut it back by half I’ll be happy.

[…] Ditching formula & going back to real food […]

F a c e b o o k