CORRECTIONS :: in the video I said there is no calcium and actually each bottle has 75% daily recommended calcium. UPDATES :: This thickened up too much in the fridge so the next morning, the pump wouldn’t handle it. We left it to get to room temp and tried again hours later and still too...
Note: this post has video in it. If you’re viewing in your inbox, click here. Grace got her feeding tube 5 years ago yesterday. It was the best decision ever. Not only can we get medications into her without fighting, we can keep her hydrated and fed when she isn’t feeling well. And of course,...
Just got home from the hospital. Grace got her PEG this week and I thought if I didn’t blog about it, like, right NOW then I knew I probably would never get around to it. There were so many feelings to get over leading up to this point. It’s like you know how there’s those...
Grace and I spent yesterday and today at Southampton General Hospital having a couple of tests done to prepare for her g-tube surgery next month. So for 5 days leading up to her appointment, she was off all of her meds. We expected a hellish few days and….nothing. No crying, no pain…nothing. She had a...
I seem to remember an episode of the Simpsons where Homer was amazed at the invention of feeding tubes so he could eat without any effort. Anyone else remember that? We went to Grace’s surgeon appointment yesterday and she immediately started talking about which tube Grace would have. My head was spinning. I was like,...
Grace is still only eating baby food and it has to be almost completely pureed. She chokes on anything chunky. So day after day, I try to keep things interesting and not spend my entire existence making separate food for Grace so here are some things I’ve learned: Whenever I make us a dinner that...
