Category Archives: Diagnosis

3 things I wish I knew upon Rett diagnosis

Hi all and happy awareness month (it’s starting to feel like a holiday). 7 years ago this month, my husband returned from a trip to Nigeria and as soon as we met him on the train platform, his first words were “what’s wrong with Grace?” Rett syndrome for Grace wasn’t a slow progression. It wasn’t...

Rett syndrome on TBN

“To beg God for healing is to say we have more compassion than He does.” The hubs and I were on TBN Meets with our friend Leon Schoeman talking about a variety of things including how we come to terms with disability and our Christian faith. Oh, and if disability doesn’t float yer boat, Steven...

New fun and games // precocious puberty

Well this explains a lot. About a year ago we first started noticing signs of puberty in Grace. Ya know…hair down there. Underarm issues. Little booblets (not a technical term). But honestly, the most perplexing thing has been the emotions. Ooooh the emotions. Lots of crying at night for no known reason. Still don’t really know,...

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