Grace for Rett » Grace's Life with Rett Syndrome

A little film for Grace’s birthday

Note: there’s video in this post. If you can’t see it, click here.

Yesterday was Grace’s 5th birthday. Pretty much all birthdays have been plagued and unenjoyable. Except for last year when we spent her day at Disney World! C’mon…how can you have a bad day at Disney?

Yesterday started pretty well and I thought it would go without a hitch. Grace had been developing a cough in the last few days and by yesterday afternoon, she was gasping for breath. She shortly ended up in the hospital with an x-ray, oxygen, a cannula, nebulizer and a diagnosis of pneumonia. Pneumonia is one of a Rett parent’s worst nightmares. Needless to say, her birthday party didn’t happen but Steven and the boys brought her party with them. We had cake and presents in her cubicle with enough cake leftover for all the doctors and nurses on the ward.

This video below is a little something we made to commemorate Grace turning 5 and our gigantic love for her. She’s literally the girl of my dreams.

Priscilla C. Briseno - November 25, 2013 - 7:19 pm

Thanks for sharing. It was very touching.

Judy Markle Johnson - November 25, 2013 - 7:31 pm

Amazing…she is such an adorable young girl…we love her too..!

Lesley Robinson - November 25, 2013 - 7:46 pm

Aww that made me cry. Such love for such an awesome girl. Xxxx

Emily Chambers - November 25, 2013 - 8:01 pm

Beautiful video, you have such a beautiful family. Happy fifth birthday to the beautiful Grace xx

Jenny Calvo Nibbs Olivera - November 25, 2013 - 8:21 pm

Such a lovely moving video….happy fifth birthday to little Grace…..

Angel Noah Dominguez - November 25, 2013 - 8:44 pm

That was beautiful! I still have a huge smile on my face. Happy BIRTHday Grace!!!!!

Becky Boxall Nee Meadows - November 25, 2013 - 9:32 pm

Crying 🙂 Happy birthday, Gracie and get well soon x x x

Denise Sheppard - November 25, 2013 - 9:42 pm

A beautiful film for Grace and three gorgeous children. Get well soon Grace xx

Debby Finn Quigley - November 25, 2013 - 10:25 pm

Gracie you’re some sweet!!! I just “LOVE” your pictures and your videos too. I am so “PROUD|” to be a part of your page and having you on my facebook. God Bless you sweetheart. And God Bless your Mommy, and Daddy and your two brothers too. “LOVE” Deb from N. B. Canada. xxx ooo 🙂 <3

Debby Finn Quigley - November 25, 2013 - 10:26 pm

“HAPPY BIRTHDAY” Grace. We “LOVE” you here in Canada. xxx ooo

Jenny Williams - November 25, 2013 - 10:26 pm

What a beautiful video of a lovely family.

Ellen Ridout - November 25, 2013 - 10:28 pm

Such beautiful . Loving little princess hope you had an amazing birthday Grace xx

Sue Dales - November 25, 2013 - 10:46 pm

I am so glad to know you Gracie May Halford. And your Mum and your Dad and your crazy brothers Jack & Elijah.

Tracie Twohigg - November 25, 2013 - 11:00 pm

That is lovely. What amazing big brother Gracie has, happy birthday honey and get well soon x

Elissa Tuvey - November 25, 2013 - 11:02 pm

Amazing little girl. . I say little but wow your 5!! where did that time go!! I’ve known you for all the time you were at haven and it was such a pleasure. .. very touching film. . Happy birthday Grace xxx

Greg Duncan - November 26, 2013 - 12:19 am

So touching happy b day grace

Stacey Norris Was Barker - November 26, 2013 - 9:24 am

Such an amazing little girl you are grace feel better very soon lots of cuddles xxx

Robin Geer Troxell - November 26, 2013 - 4:39 pm

Beautiful – the boys made me cry 🙂

Anthony Simon Harris - November 26, 2013 - 4:50 pm

happy birthday precious, love from your friends in Israel and especially Ana,el

Courtney Coleman - November 26, 2013 - 6:33 pm

Happy Birthday Grace! Our daughter Frankie is 4 1/2 and also has Rett Syndrome. Our girls are truly amazing!

Mary Martens - November 27, 2013 - 4:12 am

I love that you weren’t going to let anything take away from Grace’s special birthday! My granddaughter is 3 1/2 with Rett’s and is just as cute and loved as Grace! We are blessed!

Courtney Coleman - November 27, 2013 - 10:48 pm

Just wanted to check in and see how Grace is doing today?

Scott L. Vannatter - November 29, 2013 - 8:36 pm

I hope it’s okay that I love Gracie! I have followed her for years; she is wonderful.

Barb Tholkes - December 2, 2013 - 3:35 am

Perfect, what a perfect little girl! Happy Birthday from Minnesota.

Anonymous - January 30, 2014 - 1:58 pm

What a wonderfully sweet, funny, genuine video! I love that your captured your boys’ sense of humor and deep love for their sister. What a beautiful gift for a beautiful girl!

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